SOCIAL SUPPORT AMONG SYSTEMIC LUPUS ERYTHEMATOSUS (SLE) PATIENT IN MALAYSIA

Authors

  • Mohd Haazik Mohamed Faculty of Psychology and Education, Universiti Malaysia Sabah
  • Azimatun Noor Aizuddin, Hazlina Mohd Miskam & Idayu Badilla Idris Department of Community Health, Faculty of Medicine, National University of Malaysia Medical Centre
  • Sangaran Gopal Department of Community Medicine, Faculty of Medicine, Lincoln University College

DOI:

https://doi.org/10.51200/sapj.v11i2.4907

Keywords:

social support, demographic characteristics, systematic lupus erythematosus, MSPSS, SLE patient

Abstract

This research aims to look at the social support available for Systemic
Lupus Erythematosus (SLE) patients and its relationship with sociodemographic
and psychological factors at Universiti Kebangsaan Malaysia
Medical Center, Kuala Lumpur, Malaysia. A total of 150 patients with SLE who
are seeking treatment have filled the questionnaires distributed and consisted of
26 male patients and 126 female patients with a ratio (cross-sectional sectional
study using convenience sampling was conducted where the MSPSS
questionnaires (Multidimensional Scale of Perceived Social Support) was used
to measure the social support scores while Hospital Anxiety and Depression
(HADS) was used to measure the psychological aspect obtained by the patient.
The social support overall showed a significant relationship only with the
monthly income. Family social support were significantly related to ethnicity
and income, friends' social support was seen to have a significant relationship
with education and income, whereas else there is no significant relationship
between significant other social support with demographic characteristics of
patient with SLE. Their result showed that there was a negative strong
significant relationship between social support overall, social support from
family, social support from friends and social support from a significant other
with a score of anxiety and depression. All the test results showed p<0.000 and
r>-0.6. This means that there is a significant relationship between social
support, family social support, friend social support and social support of special
friends with the occurrence of anxiety and depression experienced by patients
with SLE.

References

Abramovitz M. (2008). Lupus: Disease and disorder. Thomson Gale:

United State.

Alarcón GS, Cianfrini L, Bradley LA, Sanchez KB, Friedman AW,

Baethge BA, Fessler BJ, Bastian HM, Roseman JM, Mcgwin G,

Reveille JD. (2002). Systemic lupus erythematosus in three

ethnic groups. X. Measuring cognitive impairment with the

cognitive symptoms inventory. Arthritis & rheumatism,

(3): 310-319.

Auerbach C, Beckerman NL. (2011). What social workers in health care

should know about lupus: A structural equation model. Health &

Social Work, 36(4): 269-278.

Avicenna M, Rafaei WAR. (2010). The correlation of health related

quality of life with psychological distress, social support, and

cognitive coping in chronic pain patient. Department of

Psychology, UIA: Malaysia.

Bertera EM. (2005). Mental health in U.S. adults: The role of positive

social support and social negativity in personal relationships.

Journal of Social and Personal Relationships, 22: 33.

Bjelland I, Dahl AA, Haug TT, Neckelmann D. (2002). The validity of

the hospital anxiety and depression scale an updated literature

review. Journal of Psychosomatic Research, 52: 69-77.

Cheng ST, Chan ACM. (2004). The multidimensional scale of perceived

social support: dimensionality and age and gender differences in

adolescents. Personality and individual difference, 37(7), 1359-

Chin CN, Cheong I, Kong N. (1993). Psychiatric disorder in Malaysians

with Systemic Lupus Erythematosus. Lupus, 2: 329-332.

Corrigan PW, Phelan SM. (2004). Social support and recovery in people

with serious mental illnesses. Community Mental Health

Journal, 40(6): 513–523.

Costa DD, Clarke AE, Dobkin PL, Senecal JL, Fortin PR, Danoff DS,

Esdaile JM. (1999). The relationship between health status,

social support and satisfaction with medical care among

patients with systemic lupus erythematosus. International

journal for quality in health, 11(3): 201-207.

Dobson KS, Dozois DJA. (2008). Risk factors in depression. Elsevier:

United State.

Fariza Y. (2003). Psychological distress, anxiety and depression among

employees attending staff clinic in HUSM. Thesis M.MED:USM

Goldberg RW, Rollins AL, Lehman AF. (2003). Social network

correlates among people with psychiatric disabilities.

Psychiatric Rehabilitation Journal, 26(4): 393–402.

Hasanah CI, Zaliha AR, Mahiran M. (2010). Factors influencing the

quality of life in patient with HIV. Qual life res, 0: 1-10.

Hipkins J, Whitworth M, Tarrier N, Jasyson G. (2004). Social support,

anxiety and depression after chemotherapy for ovarian cancer: A

prospective study. British Journal of Health Psychology; 9: 569–

Ishikura R, Morimotor N, Tanaka K, et al. (2001). Factors associated

with anxiety, depression, and suicide ideation in female

outpatients with SLE in Japan. Clin Rhematol, 20(6): 394-

Katapodi MC, Facione NC, Miaskowski C, Dodd MJ, Waters C. (2002).

The influence of social support on breast cancer screening in a

multicultural community sample. ONF Journal, 29(5): 845-852

Kong NCT. (2009). Rawatan lupus eritematosus : Bagai menjinak

serigala. Bangi: Universiti Kebangsaan Malaysia.

Lakey B, Cronin A. (2008). Low social support and major depression:

Research, theory and methodological issues. In K. S. Dobson &

D. J. A. Dozois (Eds.), Risk factors in depression, (pp. 385–408).

Elsevier Academic

Mak A, Tang CSK, Chan MF, Cheak AAC, Ho RCM. (2010). Damage

accrual, cumulative glucocorticoid dose and depression predict anxiety in patients with systemiclupus erythematosus. Journal of

Clinical Rheumatology, 30: 795–803.

Malaysian SLE Association. Apakah itu SLE? (2012). Available from:

http://www.lupusmalaysia.org/b/apakah-sle/ (accessed 25 April

.

Manson JJ, Rahman A. (2006). Systemic lupus erythemathosus.

Orphanet Journal of Rare Disease, 1: 1-6.

Mazzoni D, Cicognani E. (2011). Social support and health in patients

with systemic lupus erythematosus : A literature review.

Lupus, 20: 1117-1125.

Mueller B, Nordt C, Lauber C, Rueesch P, Meyer PC, Roessler W.

(2005) Social support modifies perceived stigmatization in the

first years mental illness: A longitudinal approach. Social

science & medicine, 62(1): 39-49

Mykletun A, Stordal E, Dahl AA. (2001). Hospital anxiety and

depression (HAD) scale: Factor structure, item analyses and

internal consistency in a large population. British

Journal of Psychiatry, 179: 540-544.

Ng CG, Nurasikin MS, Loh HS, Anne Yee HA, Zainal NZ. (2012).

Factorial validation of the Malay version of multidimensional

scale of perceived social support among a group of psychiatric

patients. MPJ Online Early; 0: 1-10.

Ng CG, Siddiq AN, Aida SA, Zainal NZ, Koh OH. (2011). Validation of

the malay version of the multidimensional scale of perceived

social support (MSPSS-M) among a group of medical students in

Faculty of Medicine, University Malaya. Asian Journal of

Psychiatry, 3(1): 3-6.

Ogce F, Ozkan S, Baltalarli B. (2007). Psychosocial stressors, social

support and socio-demographic variables as determinants of

quality of life of Turkish Breast Cancer Petients. Asian Pacific

Journal of Cancer Prevention, 8: 77-82.

Pedersen S, Erdman RAM, Helle S, Denollet J. (2009). Poor perceived

social support in implantable cardioverter defibrillator (ICD)

patient and their partners: Cross-validation of the multidensional

scale of perceived social support. Psychosomatics, 50 (5): 461-

Pinar G, Okdem S, Buyukgonenc L, Ayhan A. (2012). The relationship

between social support and the level of anxiety, depression and quality of life of Turkish women with gynaecologic cancer.

Cancer nursing, 35(3): 229-235.

Prezza M, Pacilli MG. (2002). Perceived social support from significant

others, family and friends and several socio-demographic

characteristics. Journal of community & applied social

psychology, 12: 422-429

Rizwan M, Syed N. (2010). Urdu translation and psychometric properties

of social provision scale. The International Journal of

Educational and Psychological Assessment, 4: 33-47.

Sauer KN, Czuszynska Z, Majkowicz M, et al. (2012).

Neuropsychological assessment in mixed connective tissue:

comparison with systemic lupus. Lupus, 0: 1-7.

Teoh HJ, Tam CL. (2008). A comparison of headache and non-headache

sufferers on measures of social support health problems.

Malaysian Family Physician, 3(2): 82-86.

Uchino BN. (2006). Social support and health: A review of

psychological processes potentially underlying links to disease

outcomes. Journal of Behavioural Medicine, 29 (4) : 377-

Wallace DJ. (2005). The lupus book: A guide for patients and their

families. Third Edition. Oxford University Press Inc: United

State.

Yee WS, Lin LP. (2011). Anxiety and depressive symptom among

communities in the east of peninsular Malaysia: A rural

exploration. The Malaysian Journal of Psychiatry, 20(21): 1-13.

Yusoff N, Low WY, Yip CH. (2011). Psychometric properties of the

malay version of the hospital anxiety and depression scale: A

study of husbands of breast cancer patients in Kuala Lumpur,

Malaysia. Asian Pacific Journal of Cancer Prevention, 12: 915-

Zheng Y, Ye DQ, Pan HF, Li WX, Li LH, Li J, Li XP, Xu, JH. (2009).

Influence of social support on health-related quality of life in

patients with systemic lupus erythematosus. Clinical rheumatol,

: 265-269

Zigmond AS, Snaith RP. (1983). The hospital anxiety and depression

scale. Acta Psychiatrica Scandinavica, 67: 361-370.

Zimet GD, Dahlem NW, Zimet SG, Farley GK. (1988). The

multidimensional scale of perceived social support. Journal of

Personality Assessment, 52: 30-41.

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Published

2023-09-21
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